Thursday, November 19, 2009

Call from my OB-GYN to TODAY

Today I recieved a call from my OB-GYN and another child has been diagnosed with a Vein of Galen and AVM like my son Garrison. So I'm obviously feeling her pain, but praying that GOD can get her the strength to make her own decision. I also pray and hope that her marriage can stand the test of time. Because I often forget that it's hard on a marriage. Because things aren't so perfect as you planned. It's a hassle and painful to bring him your newborn baby with a heart monitors. Then there is the 3am feeding, where the baby moves the monitor and it's sound like the baby's heart is flat line. And you wake up RUNNING to rescue a crying baby, when it the back of your mind, you're wondering is it the end. But instead, the baby wants to nurse. WOW!  I remember those day, and it makes today a little easier to know that GOD is in total control of Garrison's life. So next week we celebrate Thanksgiving! And I'm thankful for life,l health, and strenght! What are you thankful for this year?

Monday, November 16, 2009

I Should Appreciate the Small Things, but I still wonder why!

Over the last couple of weeks, I've been watching Garrison run, walk, and watch TV. And I think his body is leaning more to the left everyday. But it doesn't seem to bother him at all. And unless your ME (The Mom) then people probably won't even notice. But now, I'm nervous about someone asking me have I noticed it. What will I say or how will I handle that? I'll probably just attempt to play it off in hopes that my Inlaws won't even notice. But the reality is, I do on occasion THANK GOD for the opporunity to love Garrison and to experience GOD at his best. I mean miracle after miracle I've seen, but yet, I'm still nervous about what's to come for him. And I always want everyday of his life to be perfect! And I realize they won't be, it's call LIFE. But I'm excited to see his little round face Christmas morning. But the funny thing is...I haven't been looking forward to the Holidays. But he keeps me in the mood.

I also have another son, Gabriel. And some days I pray that he know just how special he is to me as well. Even though his issues aren't as severe as his brother. Gabriel has always had to take the back burner and I regret that. So I've tried to over extend myself to make-up for lost time. We go on mom and son dates. And I let him stay up past his bedtime! And I can see that he feels my love, he has started to kiss me goodbye in the morning! But most importantly he tends to ask about my feeling. Mom are you happy, Mom are you feeling good, Mom I love you!

Gabriel & Garrison Mom ............

Sunday, November 8, 2009

Christmas Came Early This Year!

It's funny, if someone asked me the GOLDEN question? If you had one wish, what would it be? Some would say something in reference to money. But no, not me! I'd wish that my son, Garrison could live next door to his cousins (TJ & Nic)! They are the light of his life. And as I watch him play with them, he forgets everything (even going to the potty) and just focuses on being a kids. As oppose to his withdrawal from friends at school or church. He literally runs, to the name of TJ & Nic! So I watch and inside, I cry and weep with unlimited JOY and PEACE! Why? Because he hasn't once complained about being too tired! Because in these moments the Vein of Galen is gone! So Christmas has come early for me this year. Now if I could just learn to live without hestiation or frustuation or fear that he's OK to just play. But my the secret that no one else knows, is that every moment of the day, I'm praying that he's enjoying every minute of his day!

Happy Holidays

Tuesday, November 3, 2009

It's time for me to select my Medical Insurace Carrier for next year!

First, this company covers that, then this company doesn't cover this! And that's not an actual medical necessity! WHO DIED and made you GOD! My son's needs are all important enough for a company to cover as long as I'm paying those over priced premiums.

Monday, October 19, 2009

4 Years and 8 days Old!

Today is the first day, my son began to speak to me like a Big Boy! He said things like, Mom stopping worrying about me. WOW! Out of the mouths of babes! He constantly challenges me, to focus my fears on something else other than him. My husband's job recently drop spouse and so I had to pickup myself and our children. But we only have about $1000 free to spend, then we must spend $1000 out of pocket, before the insurances kicks in. So I'm in a panic and constantly having these panic attacks worried is everything going good in his little brain.

But then again, at least now he can describe all the little detail regarding his headaches or increased heart rates. It's pretty remarkable how GOD timing can be so perfect. I prayed for the day, he can explain and express to me, his pains or discomfort and now he can.

On a sad note, someone at his school has the SWINE flu and right now I just don't need this in my life, things are finally settling down for me and my husband. We actually sleep at night and don't worry about his heart stopping at night! We have stop using all heart monitors and using GOD has the only Heart Monitor that we truly need. It's funny how much faith I can write about and say to other, but when can I really believe it at all times.

Enjoy Your Day!

P.S. I'm not a good speller, so bare with me in my desperate attempt to be an author!

Sunday, October 18, 2009

My Son "The Warrior"

Happy 4th Birthday!

Getting Ready for the Holidays!

During this time of year, I'm getting ready for the Turkey and Christmas Trees! And simplying kicking back and enjoying my family. So this post is very unique, I'm looking and searching for things to BLOG about in 2010. So please leave your comments and questions about Insurance Issues, finding the right Doctors and/or getting a second opinion, maybe your lost on trying to get Free Flights to travel to see a Doctor out of state. Or if you simply want to share your experience about your child with any type of medical issues. From ADD to ADHD or School related issue. I'm here for you!

5 weeks til Thanksgiving Break!